By Tabitha Justice & JT Hunter
Taking care of a loved one is one of the most selfless things you can do, but that doesn’t mean it should come at the expense of your own health and happiness. Too often, caregivers put themselves last, thinking that their needs aren’t as important. The truth is, you can’t take care of someone else if you’re running on empty.
That’s why Jo Horne created the Caregiver’s Bill of Rights—a reminder that your well-being matters too. If you don’t take care of yourself, burnout, exhaustion, and stress can take over, making it harder to provide the best care for your loved one. Let’s go over the key rights you have as a caregiver—and how to make sure you honor them.
The Caregiver’s Bill of Rights
You can read the full Caregiver’s Bill of Rights on the Family Caregiver Alliance website at caregiver.org, but here are a few of the most important takeaways.
You Have the Right to Take Breaks
Caring for someone doesn’t mean you have to be available 24/7. Taking breaks isn’t selfish—it’s necessary. Even short moments to breathe, rest, or do something you love can help you recharge. You deserve time for yourself, just like anyone else.
You Have the Right to Ask for Help
You don’t have to do this alone. Too many caregivers feel guilty about asking for help, but caregiving is a team effort. Whether it’s family members pitching in, hiring part-time care, or using respite services, accepting help makes caregiving more sustainable in the long run.
You Have the Right to Set Boundaries
Saying “no” doesn’t mean you don’t care—it means you’re protecting your own well-being. Caregiving should not consume your entire life. It’s okay to let others know when you need a break, when you can’t handle another task, or when you need help. You matter too.
You Have the Right to Feel Your Emotions
Caring for someone with an illness—especially dementia—can bring up a lot of emotions. You might feel sad, frustrated, resentful, or even angry at times. That’s okay. What you’re going through is hard. Finding a safe place to talk—whether it’s with a friend, a therapist, or a support group—can help you process these feelings.
You Have the Right to Take Care of Your Own Health
When was the last time you went to the doctor? Caregivers often neglect their own medical appointments, sleep, and self-care—but that only makes things harder in the long run. Prioritizing your own health isn’t selfish—it’s the best way to make sure you can keep showing up for your loved one.
How to Advocate for Yourself as a Caregiver
Speak Up About Your Needs
Don’t assume that others can see when you’re struggling. Let your family and support network know when you need a break. It’s okay to say, “I need help with this,” or “I can’t do this on my own.” The sooner you ask for support, the less overwhelming caregiving will feel.
Find a Support System
Talking to others who understand can make a huge difference. Caregiver support groups—whether in person or online—give you a place to vent, share advice, and feel less alone. You’re not the first person to go through this, and you don’t have to go through it alone.
Make Time for Yourself
Even 10-15 minutes a day can help you reset. Whether it’s taking a short walk, reading a book, enjoying a quiet coffee, or calling a friend, those little moments add up. You deserve joy, too.
Final Thought: You Matter Too
Being a caregiver doesn’t mean losing yourself. Your health, happiness, and peace of mind are just as important as the care you give to your loved one. If you’re feeling overwhelmed, now is the time to reach out for support—before burnout takes over. Contact a dementia care expert like JT Hunter at remtme.com to build a care plan that works for both you and your loved one. You don’t have to do this alone.
At Just Us Retirement, we are passionate about helping families navigate Medicare, long-term care planning, and everything in between. We offer regular workshops, seminars, and blogs on topics just like this. Stay informed and connected by:
- Following us on Facebook: https://www.facebook.com/justusretirement
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You don’t have to navigate this alone—we’re here to help!
Disclaimer:
The information provided in this blog is for educational and informational purposes only and should not be considered medical, legal, or financial advice. While Tabitha Justice is an experienced insurance professional specializing in Medicare and long-term care planning, she is not a medical provider. JT Hunter, co-author of this blog, is a Certified Dementia Practitioner (CDP), CEO of REMT Care Partner Coaching, and Co-owner of Equipped, Empowered, and Enabled, LLC. With over 16 years of experience in dementia care coaching and caregiver education, he has trained healthcare and long-term care providers nationwide. For personalized dementia care guidance, visit remtme.com. Always consult a qualified medical, legal, or financial professional regarding your specific situation.